tag:blogger.com,1999:blog-39223897333028133352012-02-10T14:40:58.182-05:00with adult onset mito diseasesusanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.comBlogger521100tag:blogger.com,1999:blog-3922389733302813335.post-20016474344520022732012-02-10T14:39:00.000-05:002012-02-10T14:40:58.186-05:00

My alarm rang at 6:21 this morning. Sam was already moving upstairs, so I reset the alarm for 6:25 - four minutes later. I do strange things at that time in the morning, especially when I've slept on the living room floor due to pain. Once upright, I fixed three packets of oatmeal, toasted a bagel, and set aside a banana before fussing at Sam for wearing really old slider sandals that I knew

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-17127450303049820552012-01-31T14:25:00.000-05:002012-01-31T14:25:49.383-05:00

When all was said and done. He sat at the kitchen table eating a plate of pasta. The high school county prelims swim meet had finished only an hour before and he had made it to the finals. But the cough was back. "Sam don’t you think I should take you to the doctor in the morning?" "I guess so,” he mumbled without much of a fight. By eleven thirty Saturday morning it was clear we’d made

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-27145231188572443062012-01-25T11:17:00.002-05:002012-01-25T23:52:17.042-05:00

The beauty in this photo is my 91 yr.old Grandma. She's supported our family by attending school functions and shows for her grandchildren (and great grandchildren) since she moved to Atlanta over thirty years ago. Last Sunday she attended my nephew's Suzuki graduation recital at Spivey Hall, even though she struggles to walk... and to remember what day it is. A little over a year ago, my

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-54386782871164772662012-01-12T17:17:00.015-05:002012-01-12T22:33:04.372-05:00

Last November, my neurologist suggested I undergo another EMG.I hate EMGs; those robotic looking, steel contraption, medieval, torture EMGs I've had several of them, and only one, performed by a pediatric neurologist, confirmed myopathy. Dr. Goldstein, Sam's neurologist, offered the answer to years of wobbly legs in June of '09, after he stuck a few needles in my muscles - the same day he

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-88149591665017797942012-01-07T11:53:00.018-05:002012-01-07T14:30:23.486-05:00

I submitted the original version of this story to an editor back in 2005. Lifeway's Journey Magazine surprised me by publishing it a year or two later. It's now saved on my website. So for a full read, check out: A Stained Glass HealingFor an abbreviated, updated version, continue here. In January of 1996, about ten months before my first husband died, we started attending a church that was

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-58080612207006323872011-12-29T20:39:00.011-05:002011-12-29T23:13:22.898-05:00

While I watched numerous Hallmark holiday specials this month, the Christmas oriented show I remember most was the Dec. 13th episode of NCIS, titled "Newborn King".I'm not joking. I found it when I browsed our "on demand" listings two days after it aired.[I also found this Star Wars nativity photo while browsing flickr, copyright Larry Lars. It captures wonder with stars and war so well].LEGO

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-57919452912674901762011-12-20T19:41:00.032-05:002011-12-29T21:05:19.886-05:00

Twenty years ago, this nativity set adorned a hand me down, beat up coffee table in a tiny upstairs apartment. My first husband's dad made the tall ceramic figures for our first Christmas back in 1990. My camera captured only half the figures that sit on my piano today. It's still my favorite decoration to unpack.After Don (husband number two) and I moved into his former home, we decided to go

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-52027408995632486262011-12-07T20:54:00.014-05:002011-12-11T18:15:21.017-05:00

A woman from the care team at church called over a month ago and asked how they might help me with life. I struggled to answer but then blurted, "Do you think someone would help me decorate for Christmas?" A week or two later she sent me an email. Three girls from my October Bible study group (Erin, Sarah, and Bethany pictured above) offered their time. They came over Wednesday night a week ago

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-86976131414591929532011-12-06T23:16:00.005-05:002011-12-06T23:30:18.642-05:00

Colby is a year older than my Sam and has battled mito for several years. Check out his story on CNN:http://http//thechart.blogs.cnn.com/2011/12/06/human-factor-college-athlete-battles-mitochondrial-disease/#commentsHow cool is that?

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-69361993132744133482011-11-29T12:44:00.021-05:002011-11-29T19:04:16.586-05:00

Back in June of '10 I posted a picture of my nails. My nasty nails. I've prayed for years that I would stop picking them. And somehow in mid-October, it happened. I stopped. I realized it hurt to pick them and I was tired of hurting myself. Some days I wonder if it has anything to do with increasing my B-12 intake. My B-12 numbers have always been low and in mid August, I decided to work on them.

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-1508340417093873552011-11-08T08:56:00.008-05:002011-11-08T10:44:23.662-05:00

Monday through Thursday, I teach voice and piano for two to three hours. To represent this part of my life, I've decided to share a small world story in honor of Lili, a second grader, who insisted on singing It's a Small World for our recital this weekend. My son, Sammy received a last minute invite to a homecoming dance a few weeks ago. I didn't know his date, Annie, so I looked forward to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-23143303588464138232011-10-29T11:11:00.014-04:002011-11-02T18:15:32.919-04:00

Rather than begin another blog by chiding myself for not writing, I decided to share some of what keeps me from expression. Today, I'm thinking about Thursdays.For over a year now, most Thursday mornings, I've met with three senior aged women for a voice/choir music lesson. Sue, Judy, and Nana (my first husband's mom) sing in their church choir and needed some vocal reassurance. So they called

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-6502740787452001872011-09-28T13:48:00.005-04:002011-09-28T14:00:21.706-04:00

Last August, I met a writer who encouraged me to stay consistent with my blog. I left the encounter determined. Within a week, however, three creative endeavors unfolded that have distracted me ever since. I've justified my absence with the excuse, "At least I'm staying creative." But I'm not sure it counts.Bottom line, the juggle remains a challenge.After much prodding from my niece and nephew

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-66410320676206639842011-09-17T18:06:00.003-04:002011-09-17T21:54:32.708-04:00

Latest tracks by SusanSchreerDavis I've known for a long time there's a way to sell music from the internet. Today I figured out how to make it happen. Haven't written a good post... but I can share the music.As evening settles the day, that alone satisfies.

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-42925204874117245952011-09-03T15:21:00.012-04:002011-09-03T18:09:05.168-04:00

Yesterday I started the day early at an FCA meeting at Kennesaw Mountain High School. Then I went back to bed. I crawled out of bed at 6:30 am because Sam, my senior in high school, leads worship there on Friday mornings and invited me to come. I'm not sure when I'll be invited again so I wasn't about to miss the moment. If you had asked me a year ago, or even six months ago if I expected to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-8734320591044671932011-08-22T17:35:00.012-04:002011-09-15T13:08:15.143-04:00

I smurf these kids. They made my summer. And even Josh, the youngest, says he'll never forget the night Aunt Susan got everyone to wear blue t-shirts at a 10pm showing of the Smurf movie.[Truth: It was a 9:30 pm showing. But Josh insists on counting it as 10pm.]Growing up, we traveled during the summer. This Delta pilot's daughter set foot in several European countries and saw her Hawaiian birth

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-28990145344822877932011-08-13T13:10:00.014-04:002011-09-15T13:04:31.036-04:00

We did it. And I feel a deep smile inside.Sam and I loaded a rental van with Nathan's belongings and drove them to Athens yesterday. Between the three of us, everything made it to his room in his new apartment in almost mint condition.A few weeks ago, I decided to rent a vehicle for Nathan's move back to school since I began to wonder if a mini SUV type ride would be easier for my bad leg to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-57604707733303336362011-08-04T16:07:00.012-04:002011-08-06T20:42:37.121-04:00

This is a picture of Nathan and me taken on his 19th birthday after a concert at UGA last spring. He performed his first solo that night and blew all my musical fuses.I drove him to college for the first time a year ago this weekend - and just took him back again yesterday. It was goodbye again - which has me reminiscing.When I came home last year, I filled a new prescription and swallowed a

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-82726142548754658762011-07-29T17:53:00.017-04:002011-07-30T11:15:17.775-04:00

This is a picture of a mitochondria. We have many of them in the cells of our bodies. Sadly, mine don't work very well. And since I tried to do more than I can last spring, I've spent most of the summer recovering from a "mito crash" I experienced in late May.I think I'm finally getting somewhere.In past years, I've counted on a Beth Moore Bible Study or a good hour of worship for spiritual

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-4170056705198882812011-03-06T14:54:00.022-05:002011-07-29T17:43:11.687-04:00

Early last month, Michelle Obama spent time in Atlanta promoting her "Let's Move" campaign. As she stood in front of an audience, encouraging exercise and activity, I sat in an office across town, listening as a Dr. Shoffner explained my need for rest. "For every fifteen minutes of housework you do," he said, "you should rest for thirty."Do the math. It's complicated.Instead of moving, I sit.

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-4761343062679770552010-12-12T12:47:00.004-05:002010-12-12T14:13:58.773-05:00

I stumbled to my coffee maker and began my morning ritual. I ground beans, measured them into a filter, and reached for the glass coffee pot - only to discover a roach had died in it over night.Dead roach in coffee pot. That's how I felt this morning.It's the third Sunday in advent and I was home alone, battling pain. Last weekend I battled a cough that tired my ribs. An inhaler settled it down,

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-58176212994296983952010-10-11T16:33:00.005-04:002010-10-11T23:11:07.225-04:00

As I watched football with Sam in the Chattanooga Choo Choo Hotel this weekend, I surfed the web, searching for info on Mitochondrial Disease. My 82 page muscle biopsy report arrived in my in box ten days ago and while I know it confirms I have adult onset Mitochondrial Disease, there's a lot more I don't know.My search led to the mito action web site where I read, "When facing a diagnosis of

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-27009282713908921872010-08-31T21:43:00.006-04:002010-08-31T22:27:11.391-04:00

More than a month has passed since my last entry. I haven’t written for two reasons: depression and awe. As summer wore on, my body wore down. Knee instability complicated normal ankle and hip weakness, leaving me overwhelmed by everyday tasks. Three rounds of transforaminal shots spread over seven weeks (of summer) helped post surgical nerve damage (from winter). The day after I completed the

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-71489095376057121712010-07-16T13:00:00.004-04:002010-07-17T13:37:26.016-04:00

When I watch the sky fill with color, I feel small in a good way. Bent rays twisted through the atmosphere create masterful evening canopies under which I rest, mindful of our Creator. It's easy to rest by the ocean under a brilliant sky. It's another thing to enter His rest during the day to day toil we live as life. At one point this summer, I told God if He would just do such and such, I could

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-65200783483095202772010-06-21T19:24:00.013-04:002010-06-21T20:40:59.231-04:00

My family knows my favorite place in San Destin- the ocean's edge. I carry my sea blue chair to where the water washes over my toes. And I sit. For hours. Sometimes with a journal. Sometimes with just an open heart.We've shared a week in Dad's time shares for about ten years. At some point on our trip, a related someone will ask something like, "Why do you enjoy staring at the water for hours on

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-59480797538300117412010-06-02T13:03:00.003-04:002010-06-02T14:08:27.062-04:00

I heard a sermon over a week ago that caused me to face the stark level of anxiety in my soul. WordNet.com defines anxiety as "a vague unpleasant emotion that is experienced in anticipation of some (usually ill-defined) misfortune." When I looked deep inside, deeper than my normal deep, I recognized worry, nervousness, and that "vague unpleasant emotion" that fights fear.As I thought about it all

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-21898088655829998122010-05-28T15:10:00.006-04:002010-05-28T17:49:08.516-04:00

A few years ago, I realized why I feel fidgety by summer's end. As the daughter of a Delta pilot, summers often included vacation adventures that started when I was eleven. We traveled to a remote Bahamian island that year where my dad "lost" our passports and later hitchhiked with my sister when our rental car broke down. A few summers later we met Gertrude the Cow in Southern Bavaria when a

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-38272823830412753562010-05-03T11:10:00.005-04:002010-05-03T12:46:11.530-04:00

I just opened a daily reading from Ransomed Heart Ministries and read, "Can it really happen? Can things in our lives be green again? No matter what our creeds may tell us, our hearts have settled into another belief. We have accepted the winter of this world as the final word and tried to get on without the hope of spring." (Desire 110-111)Two weeks ago, I listened as a neurosurgeon offered his

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-85307920054316226532010-04-25T17:09:00.006-04:002010-04-25T20:49:14.648-04:00

I lived at 3750 Apple Way for almost twelve years. In all those years, I grew only a small patch of Impatiens. They were dear to me. A sign of hope. A small victory in an otherwise unkept yard.I live across town now, in a home I tried hard to avoid. My husband and his former wife shared this abode for well over a decade. But God had other plans and we moved in a few days after Christmas, in a

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-90897739989791118632010-03-24T12:45:00.006-04:002010-03-24T17:00:09.532-04:00

An entire season has passed since I last wrote. I fell on Nov. 14th after months of concern about my weak right ankle. It encountered a small stick or a pine cone, I'm not sure which, and the ankle rolled. As I lay on my front sidewalk in pain, I became well aware that at least one surgery was imminent. About the time I began to recover from ankle surgery, we sold my former home and moved from

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-63126096572940222622009-12-08T16:12:00.012-05:002009-12-08T17:38:55.967-05:00

I've read about therapy dogs and even watched a show once called, "Miracles Pets." But I'd never experienced the healing impact an animal can have in your life until this week. As I giggled in the dark, waiting for sleep last night, I was so glad my parents have a new dog.Thirty minutes earlier, I'd sat on the stairs and scooted up backwards, one step at a time. By the time I reached the top, my

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-15402662882683202922009-12-07T10:45:00.007-05:002009-12-07T19:49:56.804-05:00

I've been staying at my folks since surgery last Thursday which has given me ample time to bond with Lily, their new puppy. Lily can be calm and cuddly or comic relief - depending on her mood. We've napped together several times. She's licked every corner of my face and hands more than once. And I've watched her chase shadows for much longer than I expected.When sunlight pours through the windows

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-57149112920393749482009-11-28T12:06:00.006-05:002009-11-28T12:46:58.344-05:00

I had a bona fide meltdown last Sunday. After a shower, church, and lunch in a restaurant with a very slippy floor, I arrived home exhausted. My leg hurt. My heart hurt. And I wasn't sure I could make the trip to South Georgia to celebrate Thanksgiving with my husband's family. So I cried and prayed and asked God to show me what to do.My answer came in a phone call Monday morning. After a short

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-36227045028311350192009-11-21T11:37:00.010-05:002009-11-21T16:18:29.301-05:00

I have two new shoes. The right one provides stability for my loose ankle. The left one anchors the weight bearing ankle and foot. Both have made my life easier this week. It took me a while to remember that this morning. While my right ankle seems to be calming down, I'm still overcoming painful memories from last week. The slightest motion in the wrong direction pulled on a tendon no longer

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-1999071433411576162009-11-03T11:42:00.005-05:002009-11-03T13:22:56.133-05:00

Meet Lily, the Cavalier King Charles puppy my parents recently acquired. She's adorable, a ball of happiness that flits about chasing shadows. She runs like the wind and then collapses like a blob of jello molded to your lap.There's nothing unusual about someone liking Lily, except when that someone is my dad.Growing up, we always had a dog. Pele, an Airedale Terrier, ran long and hard for

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-68101031876992488602009-10-20T11:18:00.009-04:002009-10-20T12:16:56.022-04:00

I woke up at Barnsley Gardens on my fortieth birthday. My sweet husband planned the surprise trip almost six months prior to my big day. We have history at the historic resort, thus it was a perfect place to celebrate the milestone in my life.After loading our bags as we prepared to leave, we took a stroll on the grounds. We'd been there before, crashed a wedding reception once. But I didn't

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-24191185568007380852009-09-28T10:59:00.004-04:002009-09-28T12:47:50.496-04:00

"He who dwells in the shelter of the Most High will rest in the shadow of the Almighty..." (Ps. 91:1)I'm a news junky. And my refurbished computer makes surfing the web for odd tidbits of news an easy past time. Sifting through dramatic stories bordering on the morose, however, takes it toll. In time, my spirit is heavy; my soul downcast.Ironically, I often wallow in news muck when I'm already a

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com5tag:blogger.com,1999:blog-3922389733302813335.post-37839347796290307282009-09-19T15:44:00.006-04:002009-09-19T16:27:47.323-04:00

Sam and I had abnormal EMG's in June. An EMG tests the health of your muscles. So basically, the test showed our muscles aren't quite healthy.Two and a half months later, I saw an adult neurologist at Emory. He told me I needed to have another EMG to validate the results of the first one. When I left Emory on August 26th, I was scheduled for an EMG on Monday, Sep. 14th.A week later, a scheduler

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-54674550884593435102009-09-11T14:26:00.007-04:002009-09-11T15:00:34.030-04:00

My computer died last week. It hadn't worked well for months. Looking back, I put off the inevitable as long as I could. So Labor Day weekend began with a trip to the computer doc.My computer spent the long weekend in rehab and came home a few days ago. It's amazing. A friend installed upgraded parts I never dreamed I would own right now. I can traffic the Internet with ease and add to blogs

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-89419363926636595362009-09-04T13:48:00.007-04:002009-09-11T14:25:44.984-04:00

Has anyone noticed the number of butterflies dancing in mid air the past few weeks? We spent the weekend in south Georgia for a family wedding. As we traveled country roads, I was amazed at the number of yellow and orange butterflies flitting about.Years ago, I noticed that Pear Trees shed their blossoms in mid-March, creating what I affectionately dubbed, "March Snow." Just about the time their

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-25508843904683739362009-08-12T13:39:00.016-04:002009-09-11T18:39:57.569-04:00

"There is a joy in the journey. There's a light we can love on the way. There is a wonder and wildness to life.And freedom for those who obey."Michael CardWhen I learned that my niece was getting married in Virginia the weekend before school started, my adventurous self awoke. I knew my boys and I would attend the wedding and stop by Wake Forest University on the way. But my wilder side wanted to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-24801044585671915912009-07-28T11:45:00.008-04:002009-07-28T13:13:03.940-04:00

I started a new supplement about a month ago. Just this week I've noticed a big difference. I wake up better, have more energy, and even made it to church on Sunday after staying out till 2 am Saturday night with my sister at a high school reunion. That would never have happened a month ago.The last two nights I've even had enough foot power left to walk around the block, not once, but twice.

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-53965735331728258032009-07-20T12:03:00.009-04:002009-07-20T22:28:55.139-04:00

I'm waiting today. I'm waiting for a fax to make it's way through the Emory referral system so a scheduler can secure an appointment for me. I need to see a particular neuromuscular specialist who works at the Emory clinic once a month. As of Friday, there were a few appointments available on August 26th. But if that fax doesn't make it's way through the system I might get bumped to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-76024104522937234432009-07-10T13:01:00.007-04:002009-07-11T00:16:11.912-04:00

I rented three movies this week. After a long day at the store, they offer low impact family together time. The Pink Panther 2 gave us all a few laughs and me a few thoughts.That said, I don't really enjoy movies where a bumbling character stumbles through scene after scene. I grow uncomfortable knowing calamity is always moments away and feel for the outsider who can't fit into the norm.So... as

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-80197531600819189752009-06-26T19:17:00.006-04:002009-06-27T14:17:43.960-04:00

Two weeks have passed since I last wrote. I've been waiting, hoping I could move past my current thoughts without putting them into print. It's summer. Time for pools, and boats, and concerts on the lawn. Discussions pertaining to neuromuscular disorders rank low on my list of fun.But I can't get to fun till I write reality.After three and half years of odd legs and wobble walking, a test finally

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2tag:blogger.com,1999:blog-3922389733302813335.post-1294531487902256502009-06-05T13:47:00.008-04:002009-06-06T12:09:00.593-04:00

After a long day at the store, Don and I sat hand in hand watching dancers twirl on stage. Rich, interpretive ballets stirred the tired depths of my soul as we waited for Nathan to appear in his tap routine. During an applause break, Don leaned towards me and said, "I like being with you."My response flowed with ease, "I like being with you too... especially when I don't think you're bossing me

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-59474376685545648272009-06-01T12:04:00.009-04:002009-06-01T15:56:31.244-04:00

I just survived one of those gloriously full weekends. My legs aren't up to par and my head hurts, but my mind is a whirl. So before I go back to bed after an early morning dental appointment, I'll write.Nathan danced in two recitals last week because he participated in two tap classes this year. I tried to limit him to one. Didn't like the fact that his teachers had more pull over my desire for

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-69329728467173563642009-05-28T10:50:00.004-04:002009-05-28T12:34:21.192-04:00

I had an appointment with Dr. Re, a neurologist, Tuesday. He checks on me every few months. While no one has been able to pin point a specific medical cause for my walking struggles, I rarely leave his office without something of value.On Tuesday, however, I waited with low expectations.I sprained a ligament in my right ankle, little by little over time this spring, until one fatal step left me

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-18390506124310749912009-05-18T15:19:00.019-04:002009-05-23T01:47:22.624-04:00

A high school friend recently commented on my facebook photo, "Susan, you've been petting that bunny a long time now." I laughed. Micki, a friend of old, used to share dinner with me and our spouses in the home where my bunny fetish began.I didn't set out to fall for bunnies. And my house isn't full of bunny trinkets and statues. Okay. A cute one made from parasite wood sits on my piano. (I

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-28757714959482343092009-05-14T14:03:00.004-04:002009-05-14T14:55:04.864-04:00

I took a step almost two weeks ago and am still sitting still as a result. A ligament on the inside of my right ankle grew weary of supporting the tendon that holds my knee in place. The knee only swells without the ankle brace, but the underlying weakness has forced me to keep a pair of crutches in my car. Driving is a bit of an issue, so I let my 17 year old son take the car today. I'm home,

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com1tag:blogger.com,1999:blog-3922389733302813335.post-1802595955908234862007-09-19T12:26:00.001-04:002009-05-20T11:56:08.073-04:00

October 25, 2007When you start a blog, you should write... not leave it blank. So here's take 2.I almost (accidentally) painted my home "Key West" purple a few years ago. My neighbor claimed the bright shade would have fit fine in sunny Florida where the tropic breeze calms pastel pallets. Atlanta suburbs required benign exteriors.The painter arrived while I was driving car pool, the morning

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com0tag:blogger.com,1999:blog-3922389733302813335.post-54357321906042694752007-07-10T00:53:00.001-04:002009-05-20T12:02:37.652-04:00

July 10, 2007It's early Tuesday morning or late Monday night. But I'm trying something new - a blog spot. As I ponder color options and struggle to upload a photo, ants roam about my desk. They come on occasion, but I haven't seen them in a while. They're out in force tonight, though. Recent rains must have driven them indoors. Don't know that I've ever seen so many.I feel far too important to

susanhttp://www.blogger.com/profile/06941827904676775715noreply@blogger.com2